1. Welcome here
- welcomehere.org.au
- The Welcome Here Project supports businesses and services throughout Australia to create and promote environments that are visibly welcoming and inclusive of lesbian, gay, bisexual, trans, and queer (LGBTQ+) communities.
- Members receive the Welcome Here rainbow stickers and charter to display in a prominent place to let everyone know that LGBTQ+ diversity is welcomed and celebrated within their business.
2. Pride in Health and Wellbeing
- prideinhealth.com.au
- Pride in Health + Wellbeing is a national membership program that provides year-round personalised support to organisations within the Health, Wellbeing and Humans services sector to improve their LGBTQ inclusion in the services they provide and within their workforce. By making more services LGBTQ inclusive we will remove systematic barriers to accessing care and thereby reduce health disparities faced by LGBTQ communities.
Develop list of existing LGBTQ+ inclusive resources (links to guidelines and websites, training packages, support organisations, where to find LGBTQ+ flags and pronoun badges, easy summary of ABS statement questions) that can be used to promote to cancer clinical trial teams
- https://www.uts.edu.au/research/impacct/cancer-symptom-trials/cst-projects/diversity-and-inclusion-cancer-clinical-trials
- https://www.cancer.nsw.gov.au/about-cancer/document-library/i-have-cancer-is-a-clinical-trial-an-option-for-me
- https://www.eviq.org.au/patients-and-carers/patient-information-sheets/fertility-sex-pregnancy-and-breastfeeding/3517-cancer-treatment-and-fertility-for-people-who
- https://www.eviq.org.au/patients-and-carers/patient-information-sheets/fertility-sex-pregnancy-and-breastfeeding/3516-cancer-treatment-and-fertility-for-people-who
- https://3ctn.ca/equity-diversity-and-inclusion-in-clinical-trials/
- https://www.abs.gov.au/statistics/standards/standard-sex-gender-variations-sex-characteristics-and-sexual-orientation-variables/latest-release
- https://psycnet.apa.org/fulltext/2024-79040-001.html
- https://mrctcenter.org/wp-content/uploads/2024/06/2024-06-10-SOGI-Data-collection.pdf
- https://www.lgbtqiahealtheducation.org/collection/clinical-studies-toolkit/
- ACON’s Pride in Health and Wellbeing – https://www.prideinhealth.com.au/
- Cancer Institute NSW’s Cancer Clinical Trials page https://www.cancer.nsw.gov.au/research-and-data/cancer-clinical-trials-in-nsw and some patient focused content for people from multicultural backgrounds
- Canadian Cancer Clinical Trials Network’s Equity, Diversity and Inclusion (EDI) Toolkit https://3ctn.ca/equity-diversity-and-inclusion-in-clinical-trials/ It’s a bit clunky, esp to find the LGBTQ+ specific info but I think the visual layout may work for a digital toolkit and promotional posts. There’s also some useful data collection checklists and manuscript writing
Some existing resources that we can build on include:
- Fenway Institute / National LGBTQIA+ Health Education Center – Creating Welcoming and Affirming Clinical Studies for LGBTQIA+ Participants Toolkit https://www.lgbtqiahealtheducation.org/collection/clinical-studies-toolkit/